{"id":6191,"date":"2024-04-02T13:17:23","date_gmt":"2024-04-02T13:17:23","guid":{"rendered":"https:\/\/www.ihu-liryc.fr\/physical-activity-and-congenital-heart-diseases-qualirehab-marks-a-turning-point-in-the-readaptation-of-young-patients\/"},"modified":"2024-04-30T07:51:45","modified_gmt":"2024-04-30T07:51:45","slug":"physical-activity-and-congenital-heart-diseases-qualirehab-marks-a-turning-point-in-the-readaptation-of-young-patients","status":"publish","type":"post","link":"https:\/\/www.ihu-liryc.fr\/en\/physical-activity-and-congenital-heart-diseases-qualirehab-marks-a-turning-point-in-the-readaptation-of-young-patients\/","title":{"rendered":"Physical Activity and congenital Heart Diseases : Qualirehab marks a turning point in the readaptation of young patients"},"content":{"rendered":"\n<p>Congenital heart diseases are pathologies linked to an abnormality in the formation of the heart or associated vessels and now affects almost one birth in a hundred. Of varying degree of severity, they can require emergency intervention as early as in the first few hours of life.<\/p>\n<smartfire-component name='spacer' attributes=\"{&quot;height&quot;:20,&quot;laptopHeight&quot;:20,&quot;tabletHeight&quot;:20,&quot;mobileHeight&quot;:20}\"><\/smartfire-component>\n<p>As a precautionary measure, these patients have long been advised against physical activity. Today, the QUALIREHAB study, led by Prof. Pascal Amedro, cardio-pediatrician at Bordeaux University Hospital and researcher at IHU Liryc, and Dr. Sophie Guillaumont, cardio-pediatrician at Montpellier University Hospital and Institut Saint-Pierre, has revolutionized this perception.<\/p>\n<smartfire-component name='spacer' attributes=\"{&quot;height&quot;:20,&quot;laptopHeight&quot;:20,&quot;tabletHeight&quot;:20,&quot;mobileHeight&quot;:20}\"><\/smartfire-component>\n<p>Initiated in 2018, this national randomized controlled trial involved 142 patients : teenagers and young adults aged 13 to 25 with congenital heart disease and being deconditioned, short of breath on effort.<\/p>\n<smartfire-component name='spacer' attributes=\"{&quot;height&quot;:20,&quot;laptopHeight&quot;:20,&quot;tabletHeight&quot;:20,&quot;mobileHeight&quot;:20}\"><\/smartfire-component><smartfire-component name='citation' attributes=\"{&quot;citation&quot;:&quot;&lt;br&gt;&lt;em&gt;Nous avons construit&lt;br&gt;QUALIREHAB pour et gr\\u00e2ce aux patients. Ils nous ont indiqu\\u00e9 qu\\u2019ils appr\\u00e9ciaient les APA, qu\\u2019ils ne souhaitaient pas que l\\u2019on stigmatise la maladie, et qu\\u2019ils pr\\u00e9f\\u00e9raient \\u00e9viter de venir trop souvent \\u00e0 l\\u2019h\\u00f4pital. Le programme QUALIREHAB sort de la t\\u00eate de nos patients.&lt;\\\/em&gt;&quot;,&quot;author&quot;:&quot;Pr Pascal Amedro&quot;,&quot;role&quot;:&quot;Cardio-p\\u00e9diatre au CHU de Bordeaux \\\/ chercheur \\u00e0 l&#039;IHU Liryc&quot;}\"><\/smartfire-component><smartfire-component name='spacer' attributes=\"{&quot;height&quot;:20,&quot;laptopHeight&quot;:20,&quot;tabletHeight&quot;:20,&quot;mobileHeight&quot;:20}\"><\/smartfire-component>\n<p>QUALIREHAB, whose primary endpoint is quality of life, evaluated the efficacy of a three-month hybrid physical readaptation program, with follow-up in a SMR (Medical and Rehabilitation Care) Center and then at home, under the supervision of specialists in adapted physical activity (APA).<\/p>\n<smartfire-component name='spacer' attributes=\"{&quot;height&quot;:20,&quot;laptopHeight&quot;:20,&quot;tabletHeight&quot;:20,&quot;mobileHeight&quot;:20}\"><\/smartfire-component>\n<p>What makes this study so special is the bold decision to evaluate the program\u2019s effectiveness one year later, rather than three months after its completion.<\/p>\n<smartfire-component name='spacer' attributes=\"{&quot;height&quot;:20,&quot;laptopHeight&quot;:20,&quot;tabletHeight&quot;:20,&quot;mobileHeight&quot;:20}\"><\/smartfire-component>\n<p>The results of the study speak for themselves. Participants in the \u201ccontrol group\u201d, who followed the three-month program showed statistically significant improvements in all the study\u2019s endpoints: an increase in quality of life, physical activity level, knowledge of the disease, and a decrease in anxiety, depression and body mass index.<\/p>\n<smartfire-component name='spacer' attributes=\"{&quot;height&quot;:20,&quot;laptopHeight&quot;:20,&quot;tabletHeight&quot;:20,&quot;mobileHeight&quot;:20}\"><\/smartfire-component>\n<p>The significant improvement in all endpoints highlights the benefits of supervised sports rehabilitation for patients.<\/p>\n<smartfire-component name='spacer' attributes=\"{&quot;height&quot;:20,&quot;laptopHeight&quot;:20,&quot;tabletHeight&quot;:20,&quot;mobileHeight&quot;:20}\"><\/smartfire-component>\n<p>The QUALIREHAB study was carried out within a short timeframe, between 2018 and 2023, and marks a turning point in the management of congenital heart disease. It highlights the potential of supervised physical activity to improve patients\u2019 quality of life and health, while helping to change medical perceptions and practices in this field.<\/p>\n<smartfire-component name='spacer' attributes=\"{&quot;height&quot;:20,&quot;laptopHeight&quot;:20,&quot;tabletHeight&quot;:20,&quot;mobileHeight&quot;:20}\"><\/smartfire-component><smartfire-component name='citation' attributes=\"{&quot;citation&quot;:&quot;&lt;br&gt;&lt;br&gt;&lt;em&gt;QUALIREHAB met la qualit\\u00e9 de vie des patients au centre des pr\\u00e9occupations. Nous avons r\\u00e9ussi, gr\\u00e2ce \\u00e0 ce programme de r\\u00e9adaptation multidisciplinaire hybride, \\u00e0 am\\u00e9liorer la sant\\u00e9 physique, mentale et l\\u2019autonomie des patients.\\u00a0&lt;\\\/em&gt;&quot;,&quot;author&quot;:&quot;Pr Pascal Amedro&quot;,&quot;role&quot;:&quot;Cardiologue au CHU de Bordeaux \\\/ IHU Liryc&quot;}\"><\/smartfire-component><smartfire-component name='spacer' attributes=\"{&quot;height&quot;:20,&quot;laptopHeight&quot;:20,&quot;tabletHeight&quot;:20,&quot;mobileHeight&quot;:20}\"><\/smartfire-component>\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n<smartfire-component name='spacer' attributes=\"{&quot;height&quot;:50,&quot;laptopHeight&quot;:45,&quot;tabletHeight&quot;:40,&quot;mobileHeight&quot;:30}\"><\/smartfire-component>\n<h2 class=\"wp-block-heading\"><p class=\"p1\"><span class=\"s1\"><b>What are congenital heart diseases?<\/b><\/span><\/p><\/h2>\n<smartfire-component name='spacer' attributes=\"{&quot;height&quot;:20,&quot;laptopHeight&quot;:20,&quot;tabletHeight&quot;:20,&quot;mobileHeight&quot;:20}\"><\/smartfire-component>\n<p>It\u2019s a heart defect present from birth. While some forms may be minor and never cause heart problems, others are more serious and can lead to severe complications.<\/p>\n<smartfire-component name='spacer' attributes=\"{&quot;height&quot;:50,&quot;laptopHeight&quot;:45,&quot;tabletHeight&quot;:40,&quot;mobileHeight&quot;:30}\"><\/smartfire-component>","protected":false},"excerpt":{"rendered":"<p>Congenital heart diseases are pathologies linked to an abnormality in the formation of the heart or associated vessels and now affects almost one birth in a hundred. Of varying degree of severity, they can require emergency intervention as early as in the first few hours of life. As a precautionary measure, these patients have long [&hellip;]<\/p>\n","protected":false},"author":12,"featured_media":6096,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[27,7],"tags":[],"class_list":["post-6191","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured","category-uncategorized"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Physical Activity and congenital Heart Diseases : Qualirehab marks a turning point in the readaptation of young patients - IHU Liryc<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ihu-liryc.fr\/en\/physical-activity-and-congenital-heart-diseases-qualirehab-marks-a-turning-point-in-the-readaptation-of-young-patients\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Physical Activity and congenital Heart Diseases : Qualirehab marks a turning point in the readaptation of young patients - IHU Liryc\" \/>\n<meta property=\"og:description\" content=\"Congenital heart diseases are pathologies linked to an abnormality in the formation of the heart or associated vessels and now affects almost one birth in a hundred. 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